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Each family has a unique story about how cystinosis has impacted their lives.
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"We dream for a better tomorrow, and with ever evolving treatments, our tomorrow grows brighter. With recent advancements in treatment and research, we believe Lily can achieve all this."
The Beauregard Family
"We are so grateful to the Cystinosis Research Foundation and the Cystinosis community as this disease can make you feel isolated and scared."
The Andrews Family
" To Ethan, cystinosis is just a part of his life, it will not keep him down, nothing will."
The Fenn Family
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CRF News
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