"We dream for a better tomorrow, and with ever evolving treatments, our tomorrow grows brighter. With recent advancements in treatment and research, we believe Lily can achieve all this."

"We are so grateful to the Cystinosis Research Foundation and the Cystinosis community as this disease can make you feel isolated and scared."

" To Ethan, cystinosis is just a part of his life, it will not keep him down, nothing will."