Dr. Reza Seyedsadjadi is looking for participants to volunteer for an interventional study to characterize the mechanism of muscular involvement in swallowing in patients with cystinosis who are experiencing myopathy.
If you are between the ages of 16 years old and 70 years old, if you have nephropathic cystinosis and distal myopathy, and meet the other criteria, please consider participating in this important study.
CRF is proud to support Dr. Reza’s research. We hope this study will lead to interventional treatments that will improve the quality of life for those living with cystinosis.
Please click the link for more information, or contact Carina Stafstrom at cstafstrom@mgh.harvard.edu or call Carina at (617) 726-5175.
