Kenzie was diagnosed with a rare disease called cystinosis when she was 2 years old. This disease causes damage to every cell and slowly destroys all the organs in the body including the Kidneys, Liver, Eyes, Muscles, Thyroid, and Brain. We held this golf tournament fundraiser to raise awareness and funds for research for better treatments and a CURE for this devastating disease.
Thank you for joining us for a fun-filled day of golf, and dinner to support Kenzie and cystinosis research. Together we will find the cure! Katie, Shawn Kenzie and Brielle